Assessment of mobility and quality of life of patients with myelomeningocele

Introduction. The myelomeningocele is the most common defect of the central nervous system. The aim of this study was to evaluate the motor activity and quality of life of patients with myelomeningocele and their families according to the epidemiologic factors, methods of rehabilitation, functional capacity, current deformation and musculoskeletal system. Material and methods. The study was conducted within the group 19 children with myelomeningocele (11 girls, 8 boys) aged 2 to 16. Basic medical and motor assessments were performed. Modified questionnaires of PedsQL / Kidscreen / CPCHILD were analyzed. Results. In the group, all the children had motor system deformity. Full independence mobility was observed in only one patient and 89% of children were able to move only with the use of orthopedic equipment. One patient was unable to move which correlated with the localization of myelomeningocele, hydrocephalus and decreased life quality. Conclusions. The factors determining the life quality of children were: the ability of ambulation ability, the level of myelomeningocele and the age. The disease significantly reduced the quality of life of children.